Chronic Illness, Organizations

Advice, comprehensive checklists, and links to key resources designed to make it easier for family caregivers to quickly find the information they need and avoid missing things that are important in the care of their loved one. Has good links in the resources sections, also sells products. Published by Mike Gamble, former caregiver, retired financial consultant and insurance agent.

This is a joint Internet presence of the Project for Excellence in Journalism (PEJ), a research organization of the Columbia University Graduate School of Journalism, and the Committee of Concerned Journalists (CCJ). The site is funded by the Pew Charitable Trusts. It contains resources for citizens, journalists in all formats, and links to articles, books, educational tools and professional guidelines. You'll find great resources for a discussion of the roles of the producers and the community partners during your Sound Partners' project.

Survivor and caregiver-oriented, the Foundation balances practical advice on issues, such as dealing with increased insurance costs, with guidance in the emotional realm.

Offers resources for the public (educational materials and health assessment tools) and Health Professionals (Clinical Practice Guidelines, publications, continuing ed, digital network, and so on.).

The U.S. Health and Human Services Healthfinder Web site has long list of health-related organizations that you can search by name, or browse by topic or organization name. For example, entering "Public Health" turned up 69 organizations.

This national organization represents local public health agencies. It works to help improve the health of all communities by promoting national policy, developing resources and programs, and supporting effective local public health practice and systems.

Allies Against Asthma is a community-based coalitions program to improve asthma care for children and adolescents. Resources on the Web: Survey instuments, tip sheets for parents, community health and development materials, and a bibliography.

This not-for-profit organization's mission is to help address the issues of aging and longevity through research, policy, education, and collaborative projects. The Web site has many free publications on topics such as sleep disorders, palliative care, and the rights of older people.

A listing, organized by key word or alphabetically, for 2004 can be found on the Web. The organizations listed distribute information, provide referrals, and answer questions on specific topics. Many have Web sites or toll-free numbers. The key word lists have descriptive paragraphs for each entry, the alpha listing does not.

The American Alliance of Cancer Pain Initiatives (AACPI) helps health care professionals improve their ability to assess and manage cancer pain. State-level Cancer Pain Initiatives, which exist in all 50 states, provide education, training, information and organizational support to health care providers, cancer patients, and their families.